Meet Henry

Meet Henry

Henry's Story

Henry Leland Seretta was born on April 14, 2014. This little monster invaded our hearts even before he was born. He was a completely healthy and happy baby, until he started getting an ear infection and colds in mid-October. We finally got rid of the ear infection, but the cold symptoms never fully disappeared. Over the weekend of November 8 & 9, Henry got significantly sicker. He was admitted to Children's Hospital in Omaha on November 10, 2014, and was diagnosed with acute myeloid leukemia on November 11, 2014. He fought hard for nearly two weeks, before passing away on November 22, 2014. This blog depicts our journey through the grief of losing Henry. If you would like to read more about his medical journey, you can visit his CaringBridge page. More photos and community posts can be found at our Hope for Henry Facebook page. Thank you for sharing this journey with us!

Sunday, December 7, 2014

Lost

Originally posted on CaringBridge on December 5, 2014 6:56pm

Someone who loses a spouse is called a widow/er.  Someone who loses their parents is called an orphan.  Someone who loses a child is called...  There is no name or label for someone who loses a child.  Yet it is just as life-altering as losing a parent or a spouse.  Every part of our day has changed.  We sleep in (slightly.)  We can go to the store whenever we want, without regard to nap times or feeding times.  We don't schedule our evenings around which night is bath night.  We can go get ice cream at 8:00 without one of us having to stay home because the baby is in bed.  On paper, life seems more convenient without a baby in the house.  And logistically, perhaps that is true.

However, I now feel like I'm missing part of myself, like part of my identity is gone.  For 7 wonderful months (plus the nine months I was pregnant) my life revolved around Henry.  I was a mom.  Now, many would say that I am still  mom, and I certainly don't disagree.  But I'm a mom without a child to take care of, and that's not quite the same.  I do take solace in knowing my two boys are playing together, and that Nana (my mom) is watching over them.  I have to think about things like that to get me through the day.  And though that gives me comfort, I still selfishly wish that Henry were still HERE, playing with ME, snuggling in MY arms.

I am so thankful for the seven wonderful months we had with Henry.  I'm thankful that we spent as much time with him as we could, that we enjoyed every moment.  I'm thankful that even when he would be fussing at 3 a.m., I thought to myself how wonderful it was that I got to rock my baby and soothe him.  I'm thankful that we took opportunities to share time with family...whether that was enjoying the Italian festival or pumpkin patch locally, or the beach in Florida.  As thankful as I am for the time we had together, however, I will always wish we had more.

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