Meet Henry

Meet Henry

Henry's Story

Henry Leland Seretta was born on April 14, 2014. This little monster invaded our hearts even before he was born. He was a completely healthy and happy baby, until he started getting an ear infection and colds in mid-October. We finally got rid of the ear infection, but the cold symptoms never fully disappeared. Over the weekend of November 8 & 9, Henry got significantly sicker. He was admitted to Children's Hospital in Omaha on November 10, 2014, and was diagnosed with acute myeloid leukemia on November 11, 2014. He fought hard for nearly two weeks, before passing away on November 22, 2014. This blog depicts our journey through the grief of losing Henry. If you would like to read more about his medical journey, you can visit his CaringBridge page. More photos and community posts can be found at our Hope for Henry Facebook page. Thank you for sharing this journey with us!

Sunday, December 14, 2014

"I don't know what to say!"

Today we had our #HopeforHenry celebration of life pancake feed.  To say the event was a success would be a gigantic understatement.  I believe we had over 1,000 people attend.  It was great to see so many familiar faces, but also so many faces that we didn't know but who have followed Henry's story.  Our planning committee did a fantastic job - I got comments throughout the event about how well everything was set up, and how well organized everything was.  It was humbling to have so many people gather to celebrate the life of our little monster.

We loved every hug, smile, and conversation.  Throughout the day I had so many people tell me, "I don't know what to say."  It's perfectly okay to not know what to say.  Don't feel bad that you don't know what to say.  Don't feel bad that you asked, "How are you doing?"  It's uncharted territory for most of us.  We can understand losing a grandparent, or a parent.  We can even understand losing an adult sibling, cousin, aunt or uncle.  It's much harder to understand the loss of a  child, especially such a tiny child.  It just goes against the natural order of things.  So why would we know what to say?  I'm not offended if you ask me how I'm doing.  I'm not offended if you don't know what to say.  Things like, "I'm thinking of you," or "I'm sorry," mean so much.  It's the thoughts and prayers of those who care that help us keep going.

To everyone that helped organize today...to everyone who volunteered their time...to everyone who donated an item for auction or for breakfast...to everyone who sent positive thoughts our way...to everyone who came and celebrated with us...thank you from the bottom of our hearts.  Now I'M the one who doesn't know what to say!  :)

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