Meet Henry

Meet Henry

Henry's Story

Henry Leland Seretta was born on April 14, 2014. This little monster invaded our hearts even before he was born. He was a completely healthy and happy baby, until he started getting an ear infection and colds in mid-October. We finally got rid of the ear infection, but the cold symptoms never fully disappeared. Over the weekend of November 8 & 9, Henry got significantly sicker. He was admitted to Children's Hospital in Omaha on November 10, 2014, and was diagnosed with acute myeloid leukemia on November 11, 2014. He fought hard for nearly two weeks, before passing away on November 22, 2014. This blog depicts our journey through the grief of losing Henry. If you would like to read more about his medical journey, you can visit his CaringBridge page. More photos and community posts can be found at our Hope for Henry Facebook page. Thank you for sharing this journey with us!

Friday, April 29, 2016

It comes in waves

Grief...worry...it comes in waves.  Sometimes you're floating along, feeling relaxed...just enjoying being in the water.  And then other times a huge wave crashes into you, sending you reeling.  You can't always see the big waves coming either...you're just floating along and BAM, suddenly you're fighting to stay afloat.

This seems to be my life lately.  Wednesday after our doctor's appointment I was fighting to stay afloat.  The questions floating through my head included, "Why us?" and, "When will we get the easy path?"  I was sad, frustrated, and even a little angry.  It didn't matter so much that the baby was still there, that her (everyone assumes it's a girl...I have no opinion one way or the other, but I'll go with it for now!) heart was beating.  It didn't matter that I haven't had any physical signs of her distress.  All that mattered was that she hasn't been progressing "normally."  (Which to be fair, who among us can claim to be "normal" anyway??)

Then yesterday, I felt so much better.  We had so much positive feedback from sharing our news...prayers and support coming in from all over the country.  It's hard to feel lost at sea when you have that much love and support surrounding you.  Plus, I decided that if the doctor could be "cautiously optimistic," then so could I.  We've had many people tell us they were in a similar situation and now have a healthy child.  Over the past few years, we've tended to end on the unlikely end of statistics, so what's to say we won't do the same now, just with a positive outcome?  And, if this pregnancy does end in miscarriage, I know that we are strong enough to make it through.  (Not that I WANT to be that strong, but I know we are.)

That brings us to today...when I got up on the wrong side of the bed...when I'm feeling unusually cranky...when I got in my car in tears because I didn't feel I could adult today.  I'm not even specifically worried about the baby.  I feel just the same physically as I did yesterday, last week, and at the beginning of the month.  I think it's just the toll of so many emotions, so many waves of worry and stress, that is finally getting to me.

Luckily (for me and everyone around me!) it's Friday.  And thankfully, I have a quiet weekend ahead of me.  I have a stack of new books from school that I can work on reading, while snuggling my puppies, in my cozy sunroom.  I can stay in my pajamas all day if I want, and there really are minimal adult tasks I will need to complete.  If I really don't feel like dealing with people, I can even order my groceries online.  Of course, it's also entirely possible that I will wake up on the RIGHT side of the bed tomorrow and feel okay once again.  Either way, I just have to get through this one day, and then I can take care of me for a couple days.

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